How I Spent My Sabbatical

Last December, I finished teaching and went on sabbatical. Tomorrow, I go back in the classroom again. I worked very hard, and these last nine months mark a major career transition for me. I suspect I produced well over 100,000 words, and it could be a LOT more if you count each blog post, talk, the book proposal, and more. I woke, I addressed the needs of my kids, then I wrote.

Today, I'm back in the classroom, and thrilled to be there. I'll be running undergraduate research at Dominican University, teaching a class on the Silk Road, and teaching the senior history seminar.

Here's what I produced:

BOOK:. I worked very hard developing a book proposal. I sold it to Beacon Press and am thrilled to be working with them on Disability Is Not A Crime. I hope to deliver the manuscript in a little less than a year. Had I sold it faster, then that's all I would have done during my sabbatical. As it was ...

MEDIEVAL/ACADEMIC:  I wrote and gave a medieval conference presentation based on my book, Sacred Plunder. I also gave a talk on shifting registers as a public medievalist, a version of which was published by postmedieval. I did some work on the Fourth Lateran Council, celebrating its 800th anniversary in November. I have a final thing to say about the Fourth Crusade and Fourth Lateran, which I shall deliver at a conference in Rome just after Thanksgiving. I'm also just finishing edits on a 5000ish-word book review on a sampling of recent higher education books.

BLOG: I wrote a couple hundred blog posts. Some of them were read by thousands of people. Some of them weren't. Some were mostly just links and others rambling, disorganized, essays 2000-3000 words long. Thank you for reading all the thoughts and links and everything I share here.

GOOGLE: I was hired by Google to write and help edit their awesome site commemorating the 25th Anniversary of the ADA. Really proud of the biographies here. Also this project ate much of June and July. I traveled a bunch, met some outstanding people, read books about the disability rights movement I've been meaning to read for years, and learned a ton. The best projects are those where you both learn and teach.

ARTICLES: Mostly what I did, though, was chase my journalism. More interviews, more in-depth pieces, new venues, longer pieces. Disability writing on all sorts of topics, lots on state violence, TV criticism, and of course higher education. I've published 40 pieces or so since the beginning of the year. I wrote some hot takes, some TV criticism, but also many pieces that took me weeks of research and hours of interviews.  Those latter are harder to accomplish during the semester.

There's going to be fewer articles in the next 12 months or so as I work on my book and go back into the classroom. Some though. Upcoming topics include: Disability and politics, Westworld and other sci-fi/fantasy shows for Vice, and some pieces on academics turned journalists.

In the meantime, here's all the pieces from 2015 so far.
  1. A "Bechdel-Wallace" Test for the Disability Community (Al Jazeera America, 8/30/15)
  2. Westworld: The Robots Are Coming! (Vice.com, 8/25/15)
  3. Stop Politicizing Down Syndrome and Abortion (CNN.com, 8/24/15)
  4. The Surprisingly Simple Future of Assistive Technology (Al Jazeera America, 8/17/15)
  5. The Outrage of Handcuffing Children in Schools (CNN.com, 8/5/15)
  6. I am a Working Dad (Father's Day 2015) (Al Jazeera America, 6/21/15)
  7. US schools must stop excluding children with disabilities (Al Jazeera America, 6/16/15)
  8. The Controversies and Success of Season 5 of Game of Thrones (Vice.com, 6/12/15)
  9. What Kids Learn When Adults Aren't Inclusive (Washington Post, 6/11/15)
  10. Where Have All the Good Bad Guys Gone? (Vice.com, 6/10/15)
  11. Speaking Out Against Autism Speaks (NYTimes.com, 6/4/15)
  12. Inspiration Porn Disables the Disabled (Al Jazeera America, 6/3/15)
  13. Jon Snow: The Only Hero of Game of Thrones? (Vice.com, 6/1/15)
  14. The World's Reserves of Game of Thrones are Running Dangerously Low (Vice.com, 5/28/15)
  15. Low Cost College Isn't Enough (CNN.com, 5/20/15)
  16. 'Mad Max: Fury Road' Is the Feminist Action Flick You've Been Waiting For (Vice.com, 5/13/15)
  17. Zoo Camp for All (Belt Magazine, 5/12/15)
  18. A Medievalist on Savage Love (Chronicle of Higher Education, 5/12/15)
  19. Save Academic Conferences! (Chronicle.com, 5/6/2015)
  20. DC Super Hero Girls - My Daughter Wants Heroes That Look Like Her (Salon.com, 5/1/2015)
  21. The Corrosive Cult of Compliance in Our Schools (Al Jazeera America, 4/22/15)
  22. Daredevil and Scenes of Ordinary Disability (Vice.com, 4/20/15)
  23. "The Net is the Meat:" Bruce Holsinger's Medieval Fiction (Tor.com, 4/20/15)
  24. RFK Jr. owes a lot of people an apology for his comments on autism (CNN.com, 4/16/15)
  25. The Telescoping History of Game of Thrones (Vice.com, 4/14/15)
  26. Sheehan vs SF: A Chance to Reduce Police Killings of People with Disabilities (Al Jazeera America, 3/22/15)
  27. Bruce Rauner: Picking on Society's Most Vulnerable (CNN.com, 3/18/15)
  28. "Daddy, What's Down Syndrome?" (Yahoo! Parenting, 3/17/15)
  29. Dear Student? How about Dear Provost? (Chronicle Vitae, 3/11/15)
  30. Why Write a Book? (Chronicle Vitae, 3/3/15)
  31. To assess LAPD shooting, look past the moment of gunfire. (CNN.com, 3/2/15)
  32. Information, Not Inspiration: How to work against the fear of Down syndrome (CNN.com, 2/18/15)
  33. From Grad School to the Atlantic (Chronicle.com, 2/11/15)
  34. Conservatives want to rewrite the history of the Crusades (The Guardian, 2/7/15)
  35. Kristiana Coignard Did Not Have to Die (CNN.com, 2/2/15)
  36. Airlines Break Too Many Wheelchairs - But We can Fix It (Al Jazeera America, 1/31/15)
  37. Associate Dean of What? (Chronicle.com, 1/26/15)
  38. Anti-Choice Legislators Try to Force Wedge Between Reproductive, Disability Rights Activists(Reproductive Health Reality Check, 1/16/15)
  39. Who Will Teach All the Free Community College Students? (Chronicle.com, 1/15/15)
  40. Harsh Critics in Public Spaces, Judging Only What They See (NYTimes.com, 1/12/15)

Sunday Roundup: Disability and TV/Movies. What I Left Out

I have a new piece up at Al Jazeera America today on disability and upcoming television shows that have, in the past, done a good job with disability issues. None are perfect shows, but it's ok to admire the good even while criticizing the bad:
Since the emergence of the newly renamed Bechdel-Wallace Test, which is used to judge women’s representation in Hollywood films, other groups that feel marginalized in the media — sadly, everyone except white men — have searched for a similar short-hand as a means to communicate what they would like to see change. In the disability community, these efforts have coalesced around two basic principles: Cast disabled actors whenever possible and tell better stories.
Too often, disability only appears as an obstacle to be overcome or a tragedy to which a non-disabled character can react, both forms of inspiration porn.
“How many times must we be subjected to the same kinds of hackneyed, overwrought and, let’s face it, lazy storytelling?” Lawrence Carter-Long, an expert on disability and film, asked during a recent email interview. “The best writing about disability focuses on character. Not a rehash of the same two-dimensional tragic or heroic movie-of-the-week stillness we’ve all seen a hundred times before.”
Here’s the good news: in the past year, a number of TV shows did a much better job telling stories about disability. I will focus on four of them, which are slated to return this year: “Empire,” “Daredevil,” “Game of Thrones” and “Switched at Birth.” Despite the flaws in each show, their depictions of disability offer successes worth celebrating.
The biggest issue I cut from the piece was about behind the scenes work. I understand that disabled actors can't always be cast, for one reason or another, but I think we focus a little too much on the on-screen talent anyway. I'd like to see Hollywood and TV work on developing a cadre of highly-skilled, disabled, directors, producers, camera operators, writers, casting directors, agents, and so forth, all the way down to Key Grip Operator and Best Boy. To me, that's at least as important as the actors (my disabled actor friends may disagree).

I deliberately chose shows that deal with all kinds of disabilities, but left plenty out. What are your favorite shows?

Here's the roundup from a very busy week of writing.

Other Published Pieces

Blog Posts:

Katrina and Disability - The Work of Claudia Gordon

One of the great pleasures of my summer was meeting and interviewing Claudia Gordon. She works for the labor department now, but ten years ago she was at the Office of Homeland Security, her attention focused on people with disabilities in the aftermath of Katrina.

Her video, shared below, talks about her development in the wake of the ADA in developing a cross-disability identity and consciousness. It's a fantastic video.

My piece that I wrote about her focused on Katrina. You can find the full bio here, by clicking over to "Claudia Gordon." If you do, pause and read the others, as the people they profile are all amazing. I write against inspiration porn, in which we claim that disabled people doing everyday things (eating, breathing, tying shoes) are inspirational. But it's ok to be inspired by people doing transformational work. If you can't be inspired by Ed Roberts, as I said to Judy Heumann (who also inspires me!), something is wrong with you.

Here's some of what I wrote about Gordon, Katrina, and disability after disaster.
It’s three weeks after Hurricane Katrina has hit New Orleans and Claudia Gordon is worried. From her perch at the Office for Civil Rights and Civil Liberties at the Department of Homeland Security in Washington, she and her colleagues are working frantically to coordinate the emergency response for people with disabilities who were in the path of the brutal hurricane. But on the ground in Louisiana, there’s just too much one-size-fits-all thinking. People with disabilities are being abandoned, forgotten, or isolated from their families.
So Gordon -- who is Deaf -- and her sign-language interpreter, is deployed to Baton Rouge to spend approximately the next three months working with the response and recovery team out of the Joint Field Office. For Gordon, it’s all about making sure that people with disabilities have access to the same services as everyone else. She insists that contractors, NGOs, and local officials understand that people with disabilities “aren’t asking for favors, they’re asking for the same thing as people without disabilities.”
The problems she encounters are many. For example, Deaf people in the shelters can’t hear announcements, such as those telling them where to go to register for disaster-relief benefits. The travel trailers being transported in aren’t physically accessible for individuals who use wheelchairs or who might use walkers. For example, some are being installed on gravel, or are too narrow for someone in a wheelchair to turn around in, or have steps that are not wide enough for someone who uses a walker. They need ramps, larger mobile homes instead of the compact trailers, accessible sites on level ground, visual smoke alarms for Deaf individuals and audio alarms for the blind, and so much more.
Homed matter. No one with a disability should have to stay in a shelter or nursing home longer than those without disabilities. Alas, people without disabilities just don't tend to think about these kinds of issues when planning for disasters. Or didn't, anyway.
So Gordon gets to work. If a contractor promises to work 24/7 to build accessible mobile home sites, she makes a surprise visit to the work-site at 1 am. She explains the need for key accommodations. She uses diplomacy, data, reason, and, most of all, personal anecdotes to explain what has to happen and why. It’s the stories of specific families, rather than the abstract discussions of disabilities and needs, that persuades and motivates the relief workers.
The effort required for those 1 am visits to the job sites and the ruffling of feathers pays off. Gordon watches as the first five families in need leave the shelters for newly accessible mobile homes. A little girl in a wheelchair rolls up to an accessible sink, turns on the water, and smiles. Remembering that day, Gordon says, “We celebrated small victories as an indicator of progress.”
Gordon won an award for her service and, perhaps most importantly, participated in a process developing a set of regular procedures for how to serve people with disabilities in the face of disasters. In fact, that process began after 9/11, but wasn't installed yet by the time of Katrina. It is now. Emergency management must include disability in their plans, and Gordon's a big part of why the Federal government is doing better today, though surely there's more work to be done.

Here's her video.



The 2016 Lincoln MKX with an available 360 Degree Camera


Lincoln is continuously raising the bar. Do you want to be able to see the invisible? In the 2016 Lincoln MKX you will be able to upgrade your field of vision, from every angle. Four cameras on the front, rear and sides merge to provide a seamless bird’s-eye view all around the vehicle. You’ll be better able to see around corners and down alleys while backing up and navigating tight parking spots. Plus, a deployable 180-degree split-view camera located in the vehicle’s front grille helps boost visibility in cross-traffic situations, intersections and seeing around parked cars.

 * Video may be unavailable on some mobile devices

2015 Lincoln MKC Crossover Black Label Edition



The 2015 Lincoln MKC Crossover Black Label edition sets the standard for luxury. This vehicle is jammed packed with state of the art technology, stylish interior design and an impeccable drive. Let me introduce you to the Black Label Experience customers that choose this option can select from three special “themes” incorporating distinct exterior colors, unique wheels, and upgraded interiors.  I enjoyed the Center Stage theme that featured a Jet Black Venetian leather seats with stylized perforations and Foxfire Red stitching. 


With the 2.3-liter engine the MKC manages 18 mpg city and 26 highway, seats 5-passengers comfortably and features 6-speed automatic with manual shifting mode.


There’s no gear shift knob in your center console. That gives you more room, providing an airy cabin and open, flowing design.
Designers put the transmission controls in a vertical series of ergonomic buttons on the center instrument panel.
MKC also provides the fun and and control of a manual transmission. Press the “S” button to activate the Sport mode.
This lets you shift gears using the paddle shifters located on the steering wheel without having to engage a clutch.



Impressive Technology:
When activated, the system can detect when the car is drifting out of its lane and warn you through a subtle vibration in the steering wheel. Additional settings allow the system to apply a steering torque that assists you to steer back to the correct path.

  • Forward Collision Warning: a heads-up display, which simulates brake lights, flashes on the windshield and provides an audible warning when a car comes to close to the vehicle.


Connect to your MKC remotely using the available MyLincoln Mobile app. The available embedded modem in the vehicle communicates with the smartphone app and allows you to start, lock, unlock and locate your vehicle from virtually anywhere in the world. You can even set up a scheduled remote start. In the app, select make your climate choice and set your MKC to start up to five to 10 minutes before you leave.

Superior Design:

Split-Wing Grille: The wings of the signature Lincoln grille spread outward and upward with the contours of the hood to create a unified, sleek and modern design.

Below is a quick video of me demonstrating the Hands-Free Liftgate, Visa Roof,  Approach Detection with Welcome Mat and Auto-fold Power Mirrors 


The 2015 Lincoln MKC MSRP Base Price FWD, $33,995; AWD, $36,490. Overall I loved driving the Lincoln MKC, its very comfortable and it was very easy to handle. The technology is excellent and is equipped with some of the best safety features on the market.

For more information on the MKC or other Lincoln Vehicles please visit http://www.lincoln.com/

Rape Culture and Down Syndrome

Content Note: This post does not describe rape, but does describe the way our justice system embodies rape culture. 

In March, 2013 - I wrote about a rape case involving a woman with Down syndrome. Her rapist was convicted, but the judge threw out the case because "she didn't act enough like a victim." The Down syndrome community reacted as if this was an attack on disability rights, which it was, but it's also a standard manifestation of rape culture in our society.

Her rapist was re-convicted yesterday. This time the conviction was upheld.

Here's my piece. I'm going to quote it at length. But you can just click over.
The Georgia appeals court judge, Christopher McFadden, argued that the verdict went "strongly against the weight of the evidence" because, in his judgment, the woman in question -- I'll join other writers in calling her Jane -- didn't act like a victim and the man didn't act like a rapist.
Jane has Down syndrome and the growing national outrage to this case has focused, with reason, on her disability. But Down syndrome is only part of the story.
The outrage is not only because this judge didn't understand Down syndrome, but that judges frequently impose their perceptions on cases of sexual assault, reducing sentences even for convicted rapists on the grounds that the victim didn't act "correctly." Jane's troubling case reveals the intersections between rape culture and the way we strip agency from people with disabilities.
So in the first place the judge didn't think Jane acted correctly. He doesn't know anything about Down syndrome. But the problem is so much bigger.
Down syndrome may be a reason this judge decided that Jane's words carried less weight when measured against his perception, but many nondisabled women, women of all social classes, races, sexual orientations, and levels of ability, have experienced precisely the same kind of dismissal.

Here are a few examples that do not involve disability.
Last year in Montana, a judge reduced a former teacher's rape conviction to 31 days because the victim, a 14-year-old girl, was "as much in control of the situation" as her rapist and, in his opinion, "older than her chronological age."
In California, a judge reduced a sentence of a convicted rapist because the woman didn't fight hard enough. The judge said, "If someone doesn't want to have sexual intercourse, the body shuts down. The body will not permit that to happen unless a lot of damage is inflicted, and we heard nothing about that in this case. That tells me that the victim in this case, although she wasn't necessarily willing, she didn't put up a fight."
In Arizona, a judge reduced a sentence of a police officer convicted of sexual abuse to community service and probation, instead blaming the victim for being in a bar. The judge said, "If you wouldn't have been there that night, none of this would have happened to you. ... When you blame others, you give up your power to change."
In Alabama, a judge structured a 40-year sentence for rape so the rapist would serve two years in a community program for nonviolent criminals and three years of probation at home. The judge, much like McFadden, argued that the victim just didn't behave correctly. He said, "You didn't hear the evidence. The original allegation was that both of these crimes were forcible. But then you have to believe that although she was forcibly raped twice, she continued to come back and have a social relationship (with the rapist)."
Other women have been prosecuted for false reporting of rape because they didn't "act traumatized." Rape convictions have been vacated entirely because the victim didn't fight back, such as in Connecticut, when the state supreme court freed a rapist because his victim, a woman with cerebral palsy and a mental age of 3, with no ability to speak, didn't bite, kick, or scratch her attacker.
As disability blogger Sarah Levis has commented, all of these stories should push our attention to this aspect of rape culture in the courtroom. Rape culture creates the myth that victims of rape must react within a predictable set of norms or raise doubts about the legitimacy of the rape. All of these women, including Jane, behaved in a way that judges didn't understand, so they overturned convictions or reduced sentences.
And here is where disability comes back into play. Because of her Down syndrome, Jane is relatively immune to the kinds of victim-blaming endured by other women who are assaulted or abused...All of the myths about false reporting of rape don't apply to Jane because of her disability, and for that at least we can be thankful. Jane's experience points to the offensive way women's behaviors are interrogated when they seek justice.
Finally, I said:
Do not focus on Jane because she is a woman with Down syndrome. Focus on Jane because she is a woman who says that she was raped. Focus on Jane because she's joined the ranks of other women, women of all races, classes, sexual orientations, and levels of ability who have said that they were raped and then had their testimony disregarded by a judge on the basis of not acting enough like a victim.
There is no one correct way to respond to being violated, but there are so many ways that our justice system can make it worse.
I'm glad Dumas is convicted. But there's so much more work to do on our justice system and to fight rape culture.

Power and the Limitations of Public Medievalism

Richard Utz has a great piece in the Chronicle of Higher Education about the ways that medievalist can more intentionally link what they do to popular expressions of ideas about the Middle Ages.
There is now a manifest discrepancy between the large number of students who request that we address their love of Harry Potter, Lord of the Rings, Game of Thrones, and medieval-themed video and computer games on the one hand, and the decreasing number of medievalists hired to replace retiring colleagues on the other. We are no longer protected by our involvement in preserving European heritages, an involvement often joined up with primordialist, jingoist, and colonialist mentalities discredited in the Western world by the 1970s. And we are as endangered as the rest of our humanities colleagues by the advent of new areas of scholarship, the intimidating popularity of the STEM disciplines, and politically motivated cuts to the liberal arts.
What can we do?
Perhaps we should begin by admitting that in enjoying the splendid isolation that allowed us to learn a lot about medieval culture, we have failed to share that knowledge with the public. As a result, a single 178-minute movie, Braveheart, could wipe out what 150 years of scholarship had established about the Right of the Lord’s First Night (a feudal lord’s rumored right to take the virginity of his serfs’ newlywed daughters). Meticulous source study since the Enlightenment about the horrific crimes committed during the medieval crusades hasn’t stopped schools from naming their teams Crusaders. And tens of thousands of learned books and articles about medieval knighthood have had no influence on white supremacists’ appropriation of allegedly chivalric virtues. It is clearly time to lower the drawbridge from the ivory tower and reconnect with the public.
I'm all for this. I don't believe there is an ivory tower (and there probably never was), but I like what he's saying here and am glad it's being so widely shared. I've obviously, I hope, tried to model just this kind of engagement in my public writing about history. I also do it in my classroom. I am the choir. If Utz is preaching to me, I am ready to sing. Go read the piece and think about it, please.

Here's my problem: Implicit in the article is an idea that if (medieval) professors take these steps to more intentionally engage with popular culture, we'll be in better shape as a profession. 

I think that's basically not true.

The Middle Ages is popular. Our classes tend to enroll well. It's vastly easier to fill a "medieval" class than one on the "long 18th century" or even the "early modern" era (though Shakespeare still beats Chaucer, and the Renaissance is doing fine). Medieval conjures images in our students' minds and we must, and I think we largely are, capitalize on that. In fact, everyone should capitalize on these kinds of things. Do 17th-century historians get pressured to invoke the Three Musketeers?
Disney's Cinderella Castle

The problem is that the profession is being restructured in ways that, legitimately, de-emphasize period-based and geography-based fields; and, less legitimately, propose a false dichotomy between skills education and liberal education, with the money and attention going heavily towards the skills side. These attacks on the nature of higher education are not enrollment-dependent, but structural, designed to steer students away from courses in the humanities and arts. We can embrace modern medievalist expressions all we want, but our power is limited. Change has to come from deep structural work, not individual bootstrapping.

What we can do is this: Have fun, write for bigger audiences, make new connections with our students, sometimes get paid, and perhaps use those connections to guide our students from their entry point - King Arthur, Game of Thrones, Harry Potter, Renn Faires, the SCA, whatever - to our actual goals in a given class or curriculum.

And that's enough for me.

Still not re-watching Braveheart.


Impact Post: CNN Piece on Down Syndrome Ban in Ohio

I wrote a piece for CNN opposing the Ohio Down Syndrome Abortion Ban. Read it here

It's been picked up and quoted by some interesting folks. I like to track impact of my writing on other journalists.

I gave this quote to Mic directly:
"But beliefs in abortion rights and disability rights are not mutually exclusive. David Perry, a journalist in Chicago who has a child with Down syndrome, says he can't stand to see pro-lifers co opt the cause. "As a father of a boy with Down syndrome, I do not want my son being used as a wedge issue in the abortion wars," he told Mic. "Politicizing births just helps the radical anti-choice fanatics play divide and conquer with the disability rights movement."
Here's one from Reason:
David Perry, a freelance writer and father of a son with Down Syndrome, accused Ohio Republicans of using children like his son as "a wedge issue." A "blanket ban isn't going to help at all, but even if it's enforced somehow, it could just lead women to lie about the reasons they aborted, or make Down syndrome code for poverty, when only poor people are forced to give birth after a diagnosis," writes Perry. He argues that "the best way to get people to choose to carry a fetus with Down syndrome to term is to make the words 'Down syndrome' less scary" and "get to work building a more inclusive society." But, "that's hard. It's not politically useful. So instead, we've got bills like HB 131 in Ohio."
Here's The Daily Beast. Allen followed the links back to my previous writing:
Other parents of children with Down syndrome, like journalist David Perry, think of the proposed ban as a “wedge issue” and a disingenuous attempt on the part of the pro-life movement to “garner sympathy from moderates.”
If you want to help people with Down syndrome, don't politicize their births,” Perry wrote for CNN. “Instead, get to work building a more inclusive society.”
Advocates like Perry prefer a strictly “pro-information” approach, in which women receive updated and less stigmatizing data about Down syndrome in the event of a prenatal diagnosis. The Ohio legislature unanimously passed a pro-information law in 2014, the seventh such law passed since 2012.
But, as Perry noted in a January RH Reality Check op-ed, pro-information laws have also become politicized by anti-abortion groups. Passed in 2014, Louisiana’spro-information law requires that any information given to women “does not engage in discrimination based on disability or genetic variation by explicitly or implicitly presenting pregnancy termination as a neutral or acceptable option.”
In other words, instead of presenting women with all options and allowing them to choose, the Louisiana law mandates that abortion cannot be discussed at all in the event of a diagnosis unless it is presented as unacceptable.
I love the close of the Daily Beast piece:
As for the Ohio bill, Democrats and other abortion rights supporters are questioning the stated intent behind the bill. Ohio Democrats attempted to attach several amendments to H.B. 135 that would increase special education funding, paid parental leave, and sick leave—amendments that were ruled as not being germane to the bill, and probably appropriately so, legally speaking.
But still, the bluff has been called: Do abortion opponents care about Down syndrome or does the debate merely suit their purposes?
Also, anti-choice Down syndrome groups are mad at me. As a loving father, I undermine their whole narrative. I can live with their anger.

Update: Aggregation failure here. Read the first paragraph.

Update 8/28: Jessica Valenti at The Guardian
But these aren’t policies that help marginalized communities. Instead, they’re part of a larger effort to chip away at abortion rights by making the procedure more difficult to obtain by putting up hurdles like waiting periods and mandating ultrasounds. They are also perverting causes around the very real issues of racism, sexism and ableism.
David Perry, a freelance journalist whose son has Down syndrome, wrote in CNNthat bills like the one in Ohio run counter to the work that disability rights advocates have been doing.
“Around the country, we’ve been making real progress in attacking the misconceptions built within the prenatal testing regime. When people receive a prenatal diagnosis, they are often told things that aren’t true, and this misinformation can naturally shape their choice of whether to terminate a pregnancy.”
Perry says instead of trying to force women to carry pregnancies, we need to focus on a “pro-information” movement that ensures women who undergo genetic testing while pregnant have access to all of the facts they need to make their own decision. But to the anti-choice movement, women aren’t capable of making decisions - they need the government to do that for them - and available information should be limited or just plain false.

Lyft Co-Founder and President John Zimmer to Keynote LA Auto Show's Connected Car Expo


Connected Car Expo® (CCE), the auto industry’s most authoritative gathering of automotive and technology leaders, announced today that Lyft, Inc. Co-Founder and President John Zimmer will keynote the Nov. 17 auto-tech conference and exhibition held at JW Marriott L.A. Live.  CCE is part of the LA Auto Show’s Press & Trade Days at the LA Convention Center (Nov 18 & 19), where more than 50 vehicles will be unveiled to an expected 25,000 auto industry executives, including 4,500 media from around the world.

John Zimmer founded
Lyft, Inc. with Logan Green in 2012 and the ridesharing platform has quickly become one of today’s fastest-growing tech companies with more than $1 billion raised from leading investors.  Lyft operates in 65 cities across the United States with more than 100,000 drivers on its platform.  In August 2014, Lyft introduced Lyft Line, a ridesharing product that utilizes its existing driver network to transport passengers going the same direction at the same time.
Zimmer was named in Forbes’ “30 Under 30: Technology” list, and both he and Green were named in Inc. Magazine’s “35 Under 35” list.  Zimmer is recognized as a pioneer and one of the foremost experts of the “on-demand” economy as Lyft has emerged as the leading rideshare company affecting positive change in the transportation business.  During the keynote, Zimmer will discuss his vision for a future with less traffic congestion and ultimately how the face of transportation will be changed around the world.
The Lyft keynote will kick off an entire day of discussions, presentations, news conferences plus exhibits from some of the top companies in the auto-tech space. More than 25 speakers will outline their vision for the dramatic changes facing the auto industry.
Highlights include:
·         Chris Valasek, director of vehicle security research, IOActive, to provide a deep dive into his Jeep hack that resulted in the world’s first automotive cybersecurity recall of 1.4 million vehicles.
·         David Strickland, partner at Venable LLC and former Administrator of the National Highway Traffic Safety Administration; Karl Heimer, founding partner of Autoimmune andSpecial Adviser for Cyber Security to the State of Michigan; and Andrew Weimerskirch, associate research scientist at the University of Michigan Transportation Institute, to discuss problems and solutions surrounding auto cybersecurity.
·         Henry Newton-Dunn, Design Manager, Google, to discuss Android Auto from the inside out.
·         Ned Curic, Chief Technology Officer, Toyota Motor Sales; Nick Sugimoto, Senior Program Director, Honda Silicon Valley Lab; and Dr. Frankie James, Managing Director Advanced Technology, Silicon Valley Office, General Motors, to discuss how automotive OEMs are tapping into west coast technology.
·         RJ Mical, Director of Games, Google; Larry Rosin, President, Edison Research; and Eric Migicovsky, Founder, Pebble, to explain how consumer electronics are reshaping vehicle interiors.
·         Prof. Thomas Form, Electronics & Vehicle Research, Volkswagen, and Brian Droessler, VP of Software & Connected Solutions, Continental, to discuss the long and winding road to autonomous vehicles.
“As technology disrupts the auto industry much like it changed the rules for the music and film industries, its critical to learn from key innovators like Lyft’s John Zimmer,” said Lisa Kaz, President and CEO of the Los Angeles Auto Show and Connected Car Expo. “The future direction of the Auto Industry is being determined by a multitude of players and the LA Auto Show’s Connected Car Expo brings together this new auto industry ecosystem to responsibly map the way.”
In the coming months, CCE will be releasing additional information on more panels and participating speakers. For a full list of current panel topics and speakers please visit: ConnectedCarExpo.com/schedule.
On Nov. 17, all presentations, discussions, CCE exhibits and news conferences will be held at the JW Marriott L.A. Live, which is adjacent to the LA Convention Center.  The remaining Press & Trade Days events and news conferences (Nov 18 & 19) will take place at the LA Convention Center.  To register for CCE and LA Auto Show Press & Trade Days, please visit: LAAutoShow.com/Join.
For additional information on CCE and LA Auto Show please visit: ConnectedCarExpo.com and LAAutoShow.com.

Robots vs Zombies

I have a new piece on Vice about Westworld. It's a new show coming from HBO and could be pretty awesome. Or, it could just re-tread the "robots become sentient" stuff from Battlestar Galactica and Humans and Ex Machina and whatever.

Here's my hope:
Because Westworld is set in an amusement park, the movie deliberately invokes clichés. You might roll your eyes if a show presented a duel at high noon or a tavern brawl replete with a body sliding down the bar, but that's precisely the point here. The tourists want to participate within those clichés: stabbing Caesar, playing poker with Wild Bill Hickok, or commanding armies in a great medieval siege. HBO, via Rome, Deadwood, and Game of Thrones has been providing its own takes on these archetypal events and settings, so Westworld has the chance to get very meta.
My fear is that it'll drag into endless repetitions of other stories about robots. That's not actually what's interesting about the film. What I liked so much is the commentary on genre, then the twists on genre when the robots don't play their parts "correctly" anymore.

Then again, I'm a genre nerd, go figure.

I also started watching Humans as I begin my own particular robot revolution television binge. Zombies are fine, I guess, but in Zombie shows, the interesting protagonists are all humans dealing with the collapse of their world. In Robot shows, on the other hand, you have the potential for more interesting interaction on both sides of the human-nonhuman line (rather than an implacable hungry deadite).

I am Legend (the book and one of the alternate movie endings) is interesting precisely because the "zombie/vampire/things" clearly are developing culture and identity, rendering them not identity, and turning the protagonist into the "monster." Just as a counter example.

Also, in any battle between robots vs zombies, robots win.

Resources: Down Syndrome and the Abortion Wars

Over the weekend, the New York Times had a front-page story on the Ohio GOP's plan to pass a ban on abortions based on prenatal diagnosis of Down syndrome. It got a ton of social media play and was the top story on Huffington Post for some hours yesterday, in part because John Kasich, Ohio's governor, is the "moderate" running for the GOP nomination.

I wrote a piece for CNN on the issue. I would appreciate you sharing it within your social media networks. 

As a parent of a child with Down syndrome and a pro-choice man, I have this to say.

1) The Forced Birth movement does not actually care about disability rights.
2) The right-wing is very good at playing divide and conquer with disability rights.
3) We have a lot of actual work to do. This isn't helping.

Some excerpts.
I'm the father of a boy with Down syndrome. I spend much of my life trying to make the world a better place for him. In doing so, I find common cause with liberals and conservatives from around the country, as we focus on issues like education, employment, and fighting stigma.
I'd like to be able to continue to find common cause. But ...
Here's the most frustrating thing for me: There is so much to complain about regarding our prenatal testing regime, the way we talk about Down syndrome, stigma against all kinds of people with disabilities, the lack of educational and employment opportunities for people with disabilities, and more. There's lots of work to do. The best way to get people to choose to carry a fetus with Down syndrome to term is to make the words "Down syndrome" less scary. That's hard. It's not politically useful. So instead, we've got bills like HB 131 in Ohio.
Right now, people with Down syndrome are shattering our biases. It's not just high-profile feel-good stories about models, or superficial inspirational stories about prom queens and athletes "allowed" to score goals. Every day, I'm seeing people with Down syndrome learn, work, form relationships, perform service to others, set goals and surpass them, and generally accomplish things that 20 years ago would have seemed impossible.
That's where our energy should be going. If you want to help people with Down syndrome, don't politicize their births. Instead, get to work building a more inclusive society.
A few resources I link to in the piece.
Last January I wrote a piece about these right-wing efforts to force a wedge between Reproductive Rights and Disability Rights Activists. We can't let them succeed.

Thanks for reading and sharing.

Brief Book Review: Reading The Martian during The Hugos

From Damien Walter at The Guardian on The Hugos:
A snapshot of today’s sci-fi publishing industry – as opposed to the fandom that ultimately underwrites the industry’s business – does not show a diverse picture. Both bookshelves and cinema screens are currently dominated by the Matt Damon/Andy Weir vehicle The Martian and its archaically old-fashioned (and vastly overrated) SF.
I am less celebratory than Walter and many others about the victory of No Award and the sarcastic use of the asterisk. I feel that everyone's biases have been confirmed. The Puppies believed that they were being discriminated against and so forced the issue. The issue, forced, confirmed to them that they cannot win even when literally they are the only things on the ballot. I don't especially care how they feel, but I'm also not kidding myself that this is a victory.

On the other hand, I am pleased to see those folks committed to more diverse stories get organized, the E Pluribus Hugo proposal passing, and the decision to refuse to let a group of bigoted fans - and yes they are fans, despite being bigoted - hijack the awards. The No Award binge was the best of a bad situation. It's not, to me, a victory.

So I don't know that it's necessary to trash The Martian (and similar books). If you like it, you like it. But fandom depends on the assertion of taste against counter-assertions, so it's not a surprise or a big deal to see Walter slam it as archaic and overrated. Except that on Saturday, I started listening to The Martian as an audiobook on the way home from DC, got engrossed, got home, bought an e-book, and read the rest of it that night before going to bed (during the Hugo ceremony). Clearly, I liked it.


As others have said, The Martian is basically an entire book that works like this scene (which Weir even references in the text at one point). The good news, for me, is that this was one of my favorite scenes of the movie, so I was pretty happy with the book. Over the course of some large number of pages, square pegs get fit into round holes repeatedly. Despite being pretty sure the protagonist would survive, it being that kind of book, it still kept me in suspense and engrossed as I sped through it.

At the very end, it kind of fell apart for me. Without spoiling anything, the situation requires complex decision-making within a few minutes. The pace of the book - predicated on spending days thinking hard about problems - accelerates in ways I found non-credible. People assess situations and come up with split-second innovative decisions to try and save the day. Then there's some treacly waffling about how great humans are. Meh.

But over all, square pegs, round holes, people being clever, some diversity in terms of gender and ethnicity, and eminently readable.

Update:

On Facebook, Brilliant Reader Nicole says:
I enjoyed *The Martian* too! We don't have to choose between *The Martian* and *Ancillary Sword* and The Kingdoms Trilogy; I can read Andy Weir and Ann Leckie and N K Jemison all in the same year. The Puppies don't seem to get that; I'm surprised to see this writer falling into the same mistake from the other side, as it were.
I agree. I liked The Martian. I didn't like it as much as Three Body Problem, Seveneves, Aurora, or End of All Things, which was the last batch of novels I read before And I expect to like the Ancillary Justice series - my next pleasure read - more. But I also didn't consume those previous books all in one night, like a big bag of potato chips which you decide to eat all of, as a special crunchy treat. Crunch crunch. Mmm, The Martian.

Sunday Round-ups

Still blogging. But mostly - I am writing a book: Disability Is Not A Crime

I'm home from DC. Amazing time at the NARPA Conference: Beyond CIT Training session I helped run, but mostly honored to meet so many advocates and experts doing the work in the trenches. Special thanks to the folks at Bazelon who co-presented with me (and for everything else they do).

One other key post  - I wrote a long post on How Not To Advocate. Too often disability rights folks - especially white, upper class ones, advocate by saying, "what about my issue!" instead of "here's how our issues overlap and intersect." It doesn't work.

NARPA Conference: Beyond CIT Training

I am flying to DC today for the annual NARPA - National Association for Rights Protection and Advocacy - Conference.

I'll be speaking about police violence and disability, along with two people from the Bazelon Center for Mental Health Law. They will focus on policy and law. I'm going to tell stories about deaths, discuss the cult of compliance, and suggest some ways to reframe how we think about the problem.

Here's the session writeup.
With increased national attention on violent encounters between law enforcement and people with mental, intellectual, or psychiatric disabilities, as exemplified by the tragic deaths of Ethan Saylor, Ezell Ford, Tanisha Anderson, and many others, as well as the City and County of San Francisco v. Sheehan case, there are many opportunities and directions for legal advocacy and social justice activism. An ideal policy strategy to reduce lethal outcomes is two-pronged: advocacy for improved crisis response, as well as for increasing the availability and accessibility of community-based crisis prevention and recovery services. While increasing funding for Crisis Intervention Training (CIT) for police is the most commonly cited policy recommendation, the evidence remains unclear as to whether CIT training actually changes law enforcement officers' behavior and there are additional significant drawbacks to a CIT-only policy approach. Mobile crisis teams (MCTs) are a promising alternative to help reduce the need for involvement of law enforcement in crisis situations, but there are other drawbacks in terms of variable availability and accessibility of MCTs depending on locale. Panelists will discuss the root causes of increased law enforcement encounters with people with psychiatric and other disabilities -- underfunded, under-resourced, community-based systems, and a lack of a social safety net -- underlining advocacy strategies to address the problem upstream.
Learning Goals and Objectives:
1. Attain familiarity with the current cases and legal debates regarding law enforcement and persons with disabilities.
2. Understand the limitations of Crisis Intervention Training (CIT) and CIT-only policy responses.
3. Learn about a range of strategies to address crisis and alternatives to prevent and reduce the need for encounters between law enforcement and persons with disabilities.
4. Describe an ideal policy response to prevent violent and tragic encounters between law enforcement and persons with disabilities.

Police Violence and Media Coverage - How Not To Advocate

Thesis: If you genuinely want to increase coverage of an issue, start with your own community and work outward. Anything else is just an attempt to play one group off another.

This will be a little rambling, as I'm working through my ideas. That's why this is on my blog and not formalized and submitted somewhere. Also, I need to get back to other work (syllabus, presentation at NARPA on police violence and disability, an essay on higher ed, an essay on TV, and my book. It's gonna be a 5000 word day). 

The other day, two photos of a 7 and 9 year old having killed lions went viral. Here's what the Dad said:
Tarpley deleted the images and deleted his Twitter account, but defended the hunt to the Daily Mail, saying critics "don't understand it."
"They don't care about human beings and babies being slaughtered and body parts being sold for Planned Parenthood but they care about one animal," he told the website. "There was no media hype about Planned Parenthood selling baby parts but one lion gets killed and everyone goes crazy."
He also said that his family has given up hunting as they can no longer afford it.
There was no media hype about Planned Parenthood? On what planet was there no media hype? It was one of the most hyped stories of the month, like it or not. Tarpley is not actually interested in media coverage, but in deflecting and de-emphasizing.

I'm opening with this story to talk about a piece that Matt Hennessey wrote for the National Review. Hennessey, in his essay, is complaining that there isn't enough coverage about discrimination against people with Down Syndrome. Here is a DoNotLink to the essay. The author and his wife, on Twitter, were mad that I used a DoNotLink, but if one writes for a partisan publication like NRO, that's the price you pay.

They are parents of a child with Down syndrome and like me, I think they just want to make the world better for their kids. But instead of working on that, Matt wrote to complain about the culture wars. His essay, summarized, says: Why are people worried about gay and black people, and not about (white) kids with Down syndrome?

Here's some excerpts:
Have you heard about the Christian bakers who refused to make wedding cakes for gay couples? Of course you have. But I’ll bet you didn’t hear about the dance studio that refused service to a little girl with Down syndrome.
I have actually heard about the dance studio. It was all over the news, including in Cosmo, which has a pretty vast readership.  In fact, the news media loves stories of discrimination against cute kids with Down syndrome. They eat it up, publish pieces that generate clicks through outrage, and then nothing happens. There's no action item that follows, there's no attempt to engage in the systemic problem of a lack of inclusive recreation opportunities for children (something I've written about), but rather a kind of Outrage Porn. You're supposed to say - "Oh my god, it's so awful," and click share/tweet, to increase clicks for the publication. This dance studio story is right center in the meaningless outrage pornographic news media wheelhouse.

So first problem with this NRO piece: It complains that a viral story isn't viral enough. As evidence, the author cites a lack of coverage at the NYT and CNN.

Then he turns to Ethan Saylor. I've written 5 or 6 articles about Ethan over the last few years, so suffice it to say that I agree Saylor's story needs more coverage.
You’ve heard of Michael Brown and Eric Garner. Both died after interactions with law enforcement went tragically wrong. You’ve probably never heard of Robert Ethan Saylor.
The second problem with the NRO piece is that he claims a lack of coverage for Saylor, but either doesn't know or doesn't care that reforms are underway.  Maryland passed Ethan's law. It took a lot of work to get attention for his story and 18 months ago there was good cause to fight for basic media coverage. Now, though, it's worth pausing to consider the overview. Ethan's death was unusual. For all that police killings of people with disabilities are common, deaths of people with Down syndrome are are. There's no clearly defined cultural pattern in which people could talk about his death (my work has been focused on changing that), as opposed to the quotidian killings of black Americans by police, for which the cultural pattern goes back centuries.

But once we - mostly Patti Saylor and her close allies - got attention for Ethan's death, they also effected real change. Ethan's Law is really important. The new trainings they are doing actually include people with developmental disabilities interacting with law enforcement, rather than actors (also providing jobs for people with DD). It's powerful stuff. So yes, it didn't get the national attention it deserved (other than my articles for CNN, The Nation, The Atlantic, and Al Jazeera - all of which are pretty national), but it also didn't go unanswered. Structural reforms are on their way.

Hennessy concludes with a lament that the news story on the dance studio didn't name the offending studio, while anti-gay bakeries and pizzerias did.
I don’t mean to single out News4, WIVB. I really know nothing about it. But in refusing to broadcast the name of the dance studio that turned away a little girl with Down syndrome, it is not being journalistically neutral, it is playing the same old liberal media game of granting special privileges to preferred classes. All lives matter, but some evidently matter more than others.
So if the parents wanted the dance studio named, that could happen. I feel the author should respect the parents' wishes, though I share his frustration at the discrimination. There's a bigger issue here though - The third problem is that Hennessy evidently feels that in order to get attention for his issues he has to complain about attention that other issues are receiving. That's not the way to do it. Last year, I wrote about the intersections between race and disability, to show that when we talk about Eric Garner, we need to think about him as a disabled man and as a black man, and that there are links between Saylor's death and Garner's, even if they are not the same thing.

I don't know Hennessy's real motives. He didn't seem inclined to engage on Twitter (I didn't link to him or @mention him when tweeting yesterday, but he jumped in, angry at the criticism). But here's the thing - If he really cared about coverage of discrimination against people with disabilities, the best thing an NRO author could do was not complain about NYT/CNN, but about Fox News, which also didn't cover the dance studio story. We are at our most powerful not when screaming across the partisan void, but when helping people within our communities see connections, see why issues matter, and think about how to act beyond the outrage-of-the week.

Here are some of our tweets:



Disability Is Not A Crime - Beating in SF, Trial in NM, Murder in Prison

This is just news from yesterday.

SFPD were filmed abusing a man with a prosthetic leg and crutches. Initially, the claim was that he was "waving sticks around like weapons" outside Twitter's hq. Since that claim has been debunked (notice a lack of sticks in the video), they are now claiming they were "helping" him through his mental health crisis.

In New Mexico, the killers of James Boyd will go to trial. A trial is a good and unusual outcome. I wish I were more optimistic that these men would be held accountable, even with incontrovertible video evidence. The police will say, "I felt threatened," and that statement of fear is both unprovable and usually enough to acquit.

And in New York, prison guards allegedly murdered a black, bipolar, prisoner. So far, there have been no arrests or internal disciplines for the guards.

Disabled Parents Have Parental Rights

Yesterday I announced that I am writing a book about the criminalization of disability in American society. Disability is not a crime, but it's treated like a crime throughout our society. I'm going to talk about policing, but also the way this mentality emerges in other aspects of society.

Here's one: Parenting while disabled.

Disabled parents are often discriminated against in all kinds of formal (i.e. state attacks on their rights) and informal (attitudes) ways. Here's a National Council on Disability report on parenting while disabled, with lots more information.

Sometimes, though, it's more useful to look at a single story. Imagine being in a custody battle, and your partner claims, in court, that your disability makes you unfit to be a parent. That's happening to Mike. Here's his IndieGoGo fundraiser, and it's been vouched for by people I trust. I don't know the details of his marriage, of course, but I do know that his fitness as a parent is not predicated on not having a disability. It's a kind of language we need to fight. 
As the case now goes to trial it is becoming clear that Mike's former partner will be using his disability against him in an effort to prevent him from gaining access and any custody. A number of her court filings contain factual inaccuracies and gross misrepresentations, including her statement that Mike is too disabled to parent his son without full-time assistance, and that his disability limits his son's life.
Parenting while disabled is not a crime.

The 2016 Nissan cars, SUVs and trucks lineup


Leading the way for 2016 are two more all-new models – the eighth-generation Nissan Maxima "4-Door Sports Car" and the category redefining, Cummins diesel-powered Nissan TITAN XD pickup. The stunning new Maxima arrived at Nissan dealerships nationwide in June and will be followed by TITAN XD later in the year.

But that's not all. Two of the company's top-selling models, Altima and Sentra, also will see significant refreshing in the 2016 model year.
 
The new model year also sees the continued advancement of Nissan safety and connectivity system technology across the widest-ever application of vehicles and trim levels – including NissanConnect with Navigation and Mobile Apps, NissanConnect Services telematics, Predictive Forward Collision Warning (PFCW), Driver Attention Alert (DAA) and Around View® Monitor (AVM) with Moving Object Detection (MOD), just to name a few.
 
Nissan's Forward Emergency Braking (FEB), which uses radar technology to monitor speed and proximity to the vehicle ahead, is now available on the 2016 Rogue. It joins Murano and Maxima as vehicles offering this advanced technology usually found on more expensive luxury vehicles. Nissan will add the technology to more products before the year is finished.
 
The new year also sees the introduction of Siri™ Eyes Free to the Nissan lineup, beginning with the 2016 JUKE and Rogue. The system allows drivers to utilize the Siri™ function on equipped iPhones® through a voice command button on the steering wheel without having to take their eyes off the road.


Here is an overview of the major enhancements to Nissan cars, SUVs and trucks for the 2016 model year.

  • Versa Note SV adds content of the previous SV Convenience Package as standard equipment, including: NissanConnect with Mobile Apps, 5.0-inch color display, Streaming audio via Bluetooth®, Hands-free Text Messaging Assistant and SiriusXM Satellite Radio (SiriusXM subscription required, sold separately), RearView Monitor and Divide-N-Hide® Adjustable Floor
  • 370Z Coupe and 370Z NISMO add a new available Bose® audio system incorporating Active Noise Cancellation (ANC) and Active Sound Enhancement (ASE)
  • JUKE adds two new Personal Package options, Solar Yellow on the SV grade and Super Black on the SL grade, along with the addition of standard Siri™ Eyes Free
  • Pathfinder features new high-contrast Almond interior, and a Cold Package is now available with the SV grade
  • Quest adds a standard Dual Panel Moonroof on Platinum grade
  • Rogue adds Forward Emergency Braking (FEB) to Rogue SL Premium Package; Rear Cross Traffic Alert (RCTA) added to Rogue SV and SL Premium Packages; Motion-Activated Power Liftgate and NissanConnect Services telematics added to Rogue SL; Siri™ Eyes Free added to Rogue SV Premium Package and Rogue SL
  • NV Cargo adds 1st row side- and roof-mounted curtain supplemental side-impact air bags with rollover sensor for front outboard occupant head protection as standard equipment
  • And Xterra, one of the boldly designed vehicles that helped reinvigorate the Nissan brand at the beginning of the century, will go out of production after a highly successful 15-year run